{"id":32243,"date":"2023-02-17T17:32:41","date_gmt":"2023-02-17T16:32:41","guid":{"rendered":"https:\/\/faus-moliner.com\/__trashed-2\/"},"modified":"2023-03-24T10:48:22","modified_gmt":"2023-03-24T09:48:22","slug":"__trashed-2","status":"publish","type":"post","link":"https:\/\/faus-moliner.com\/ca\/__trashed-2\/","title":{"rendered":"Faus Moliner participa en la\u00a0European\u00a0Rare\u00a0Disease\u00a0Summit\u00a02023 organitzada per la Fundaci\u00f3\u00a0Bamberg"},"content":{"rendered":"\n

En la seva intervenci\u00f3, Jordi Faus va plantejar que l’acc\u00e9s als medicaments orfes \u00e9s una q\u00fcesti\u00f3 clau en la pr\u00f2xima revisi\u00f3 de la legislaci\u00f3 farmac\u00e8utica de la UE i que ara \u00e9s el moment perfecte per intercanviar opinions i debatre sobre aquest tema.<\/p>\n\n\n\n

Jordi Faus tamb\u00e9 va exposar com la jurisprud\u00e8ncia dels tribunals, tant nacionals com europeus, est\u00e0 modificant la interpretaci\u00f3 del dret a la salut com un dret \u00edntimament lligat al dret fonamental a la vida, ent\u00e8s com alguna cosa m\u00e9s que el mer dret a existir. Jordi Faus va afirmar que, a mesura que els tribunals comencen a recon\u00e8ixer aquest canvi de paradigma, les pol\u00edtiques p\u00fabliques hauran d’actuar en conseq\u00fc\u00e8ncia. En aquest sentit, va exposar Jordi Faus que aprovat un medicament orfe, totes les parts interessades han de col\u00b7laborar, des del seu respectiu \u00e0mbit de responsabilitat, perqu\u00e8 els pacients tinguin acc\u00e9s a ell quan se’ls prescrigui.<\/p>\n\n\n\n

\"La<\/figure>\n\n\n\n

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\"\"<\/figure>\n<\/div>","protected":false},"excerpt":{"rendered":"

En la seva intervenci\u00f3, Jordi Faus va plantejar que l’acc\u00e9s als medicaments orfes \u00e9s una q\u00fcesti\u00f3 clau en la pr\u00f2xima revisi\u00f3 de la legislaci\u00f3 farmac\u00e8utica de la UE i que ara \u00e9s el moment perfecte per intercanviar opinions i debatre sobre aquest tema. Jordi Faus tamb\u00e9 va exposar com la jurisprud\u00e8ncia dels tribunals, tant nacionals… <\/p>\n

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M\u00e9s informaci\u00f3<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[356],"tags":[],"coauthors":[106],"class_list":["post-32243","post","type-post","status-publish","format-standard","hentry","category-noticies-i-events"],"acf":[],"yoast_head":"\nFaus Moliner participa en la\u00a0European\u00a0Rare\u00a0Disease\u00a0Summit\u00a02023 organitzada per la Fundaci\u00f3\u00a0Bamberg - Faus Moliner<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/faus-moliner.com\/ca\/__trashed-2\/\" \/>\n<meta property=\"og:locale\" content=\"ca_ES\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Faus Moliner participa en la\u00a0European\u00a0Rare\u00a0Disease\u00a0Summit\u00a02023 organitzada per la Fundaci\u00f3\u00a0Bamberg - Faus Moliner\" \/>\n<meta property=\"og:description\" content=\"En la seva intervenci\u00f3, Jordi Faus va plantejar que l’acc\u00e9s als medicaments orfes \u00e9s una q\u00fcesti\u00f3 clau en la pr\u00f2xima revisi\u00f3 de la legislaci\u00f3 farmac\u00e8utica de la UE i que ara \u00e9s el moment perfecte per intercanviar opinions i debatre sobre aquest tema. 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