{"id":32244,"date":"2023-02-17T17:32:41","date_gmt":"2023-02-17T16:32:41","guid":{"rendered":"https:\/\/faus-moliner.com\/__trashed-2\/"},"modified":"2023-03-21T15:06:46","modified_gmt":"2023-03-21T14:06:46","slug":"__trashed-2","status":"publish","type":"post","link":"https:\/\/faus-moliner.com\/en\/__trashed-2\/","title":{"rendered":"Faus Moliner participates in the European Rare Disease Summit 2023 organized by Fundaci\u00f3n Bamberg"},"content":{"rendered":"\n<p>During his intervention Jordi Faus stated that access to orphan drugs is a key issue in the upcoming review of EU pharmaceutical legislation and that now is the perfect time to exchange views and debate on this issue.<\/p>\n\n\n\n<p>Jordi Faus also explained how the jurisprudence of the courts, both national and European, is changing the interpretation of the right to health as a right intimately linked to the fundamental right to life, understood as something more than the mere right to exist. Jordi Faus stated that, as the courts begin to recognize this paradigm shift, public policies must act accordingly. In this sense, Jordi Faus explained that once an orphan drug has been approved, all stakeholders must collaborate, from their respective areas of responsibility, to ensure that patients have access to it when it is prescribed.<\/p>\n\n\n\n<figure class=\"wp-block-image is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid00-1024x582.jpg\" alt=\"La imagen tiene un atributo ALT vac\u00edo; su nombre de archivo es 2023-02-15-Bamberg-Madrid00-1024x582.jpg\" width=\"623\" height=\"354\"\/><\/figure>\n\n\n\n<p><\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignleft size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid2-1024x576.jpg\" alt=\"\" class=\"wp-image-32056\" width=\"579\" height=\"325\" srcset=\"https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid2-1024x576.jpg 1024w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid2-300x169.jpg 300w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid2-32x18.jpg 32w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid2-768x432.jpg 768w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid2-1536x864.jpg 1536w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid2.jpg 2016w\" sizes=\"auto, (max-width: 579px) 100vw, 579px\" \/><\/figure>\n<\/div>\n\n\n<p><\/p>\n\n\n\n<p><\/p>\n\n\n<div class=\"wp-block-image\">\n<figure class=\"alignleft size-large is-resized\"><img loading=\"lazy\" decoding=\"async\" src=\"https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid3-1024x576.jpg\" alt=\"\" class=\"wp-image-32062\" width=\"578\" height=\"324\" srcset=\"https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid3-1024x576.jpg 1024w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid3-300x169.jpg 300w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid3-32x18.jpg 32w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid3-768x432.jpg 768w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid3-1536x864.jpg 1536w, https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid3.jpg 1920w\" sizes=\"auto, (max-width: 578px) 100vw, 578px\" \/><\/figure>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>During his intervention Jordi Faus stated that access to orphan drugs is a key issue in the upcoming review of EU pharmaceutical legislation and that now is the perfect time to exchange views and debate on this issue. Jordi Faus also explained how the jurisprudence of the courts, both national and European, is changing the&#8230; <\/p>\n<div class=\"clear\"><\/div>\n<p><a href=\"https:\/\/faus-moliner.com\/en\/__trashed-2\/\" class=\"excerpt-read-more\">Read More<\/a><\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"inline_featured_image":false,"footnotes":""},"categories":[209],"tags":[],"coauthors":[106],"class_list":["post-32244","post","type-post","status-publish","format-standard","hentry","category-news-events"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v26.6 - https:\/\/yoast.com\/wordpress\/plugins\/seo\/ -->\n<title>Faus Moliner participates in the European Rare Disease Summit 2023 organized by Fundaci\u00f3n Bamberg - Faus Moliner<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/faus-moliner.com\/en\/__trashed-2\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Faus Moliner participates in the European Rare Disease Summit 2023 organized by Fundaci\u00f3n Bamberg - Faus Moliner\" \/>\n<meta property=\"og:description\" content=\"During his intervention Jordi Faus stated that access to orphan drugs is a key issue in the upcoming review of EU pharmaceutical legislation and that now is the perfect time to exchange views and debate on this issue. Jordi Faus also explained how the jurisprudence of the courts, both national and European, is changing the... Read More\" \/>\n<meta property=\"og:url\" content=\"https:\/\/faus-moliner.com\/en\/__trashed-2\/\" \/>\n<meta property=\"og:site_name\" content=\"Faus Moliner\" \/>\n<meta property=\"article:published_time\" content=\"2023-02-17T16:32:41+00:00\" \/>\n<meta property=\"article:modified_time\" content=\"2023-03-21T14:06:46+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid00-1024x582.jpg\" \/>\n<meta name=\"author\" content=\"Faus Moliner\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:label1\" content=\"Written by\" \/>\n\t<meta name=\"twitter:data1\" content=\"Faus Moliner\" \/>\n\t<meta name=\"twitter:label2\" content=\"Est. reading time\" \/>\n\t<meta name=\"twitter:data2\" content=\"2 minutes\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\/\/schema.org\",\"@graph\":[{\"@type\":\"Article\",\"@id\":\"https:\/\/faus-moliner.com\/en\/__trashed-2\/#article\",\"isPartOf\":{\"@id\":\"https:\/\/faus-moliner.com\/en\/__trashed-2\/\"},\"author\":{\"name\":\"Faus Moliner\",\"@id\":\"https:\/\/faus-moliner.com\/en\/#\/schema\/person\/b62ac2c67efed1b6f50872c1d6366f90\"},\"headline\":\"Faus Moliner participates in the European Rare Disease Summit 2023 organized by Fundaci\u00f3n Bamberg\",\"datePublished\":\"2023-02-17T16:32:41+00:00\",\"dateModified\":\"2023-03-21T14:06:46+00:00\",\"mainEntityOfPage\":{\"@id\":\"https:\/\/faus-moliner.com\/en\/__trashed-2\/\"},\"wordCount\":150,\"publisher\":{\"@id\":\"https:\/\/faus-moliner.com\/en\/#organization\"},\"image\":{\"@id\":\"https:\/\/faus-moliner.com\/en\/__trashed-2\/#primaryimage\"},\"thumbnailUrl\":\"https:\/\/faus-moliner.com\/wp-content\/uploads\/2023\/03\/2023-02-15-Bamberg-Madrid00-1024x582.jpg\",\"articleSection\":[\"News &amp; 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